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LIMA — Remy Hefner is 17 months old and has a ataxia that causes her to accept babyish tumors on her body.

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She has had 22 visits back July 24 to the Cleveland Clinic. She has apparent a neurologist, cardiologist, ophthalmologist, pediatric specialist, dermatologist, urologist and hematologist and analysis doctor.

Her mother, Jennifer, was a bassinet at Dollar General in Lima and had to footfall bottomward from her job to affliction for Remy. She now works at Jackson-Hewitt in Lima. Her father, Mark Hefner, afresh was laid off from his job and stays at home to affliction for Remy and her two brothers, Oscar, 4, and Felix, 3.

Jennifer came up with the abstraction of accepting the association accelerate her babe Christmas cards.

“I saw a Facebook column a ages ago of a adolescent in addition accompaniment with blight who got Christmas cards from their community

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Crazy Frog – We Wish You A Merry Christmas – Remix Music .. christmas card jpg

and I anticipation it would be a abundant way for our association to appearance she is loved,” Jennifer said.

She said Remy loves to accessible things in the mail.

“I appetite Remy to apperceive as she grows up that bodies are there for her and affliction about her,” Jennifer said.

Even admitting Remy has been through a continued bloom journey, she consistently has a smile on her face, according to her mother.

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She loves to comedy with her brothers and brand Frozen and dinosaurs and her mother said she is a acceptable kid who doesn’t usually cry.

Remy is not able to talk, alone adage “mom.” Accouchement with nF1 don’t usually allocution until they are 3 years old Jennifer said.

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Remy was built-in July 3, 2018, at St. Ritas Hospital in Lima belief seven pounds six ounces and was a advantageous baby.

At her six anniversary analysis she was diagnosed with a disease, pectus excavatum, area her chest bank had a aberration and was abate than it should be.

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Christmas Card Template | Free Vector – Zonic Design Download christmas card jpg christmas card jpg

“I knew article was still amiss as she had agitation animation and she had an xray done and claret assignment and her white claret corpuscle calculation was an indicator of adolescence cancer,” Jennifer said.

Remy was rushed to Nationwide Children’s Hospital and was diagnosed with nf1/neurofibromatosis in August. On Monday she will accept a amateur ambit and a non ambiguous anaplasty at Cleveland Clinic on her throat to advice her animation easier.

Nf1 causes tumors on the body’s assumption endings and Remy has fibromas on her chest, shoulder, abdomen and back that causes her to itch. The ancestors will break at the Ronald McDonald House while Remy receives her anaplasty and stays there back she goes for treatments.

The ancestors will participate this bounce in a Midwest NF airing for accouchement with nero fibromitosis. They are planning a account concert for abutting October in Lima for the association to accession funds to advice with Remy’s medical expenses. Molly Braun, who manages Fort Wayne Indiana based bandage “Creep” is allowance adapt the benefit.

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Explosion of Life christmas card jpg christmas card jpg

Christmas cards for Remy can be mailed to her home at 559 Cortlandt Avenue Lima, Ohio 45801. The association additionally can chase Remy on Facebook at Remynyxrfr or at Rock For Remy.

Reach Jennifer Peryam at 567-242-0362.

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